In the world of Cystic Fibrosis, this is an exciting time! Medications are being engineered to address specific mutations and find a cure for CF. This is why knowing one's genetic mutations and being on top of the news about those mutations is vitally important.
In order to more effectively communicate with each other, we have created a Facebook group for those with the genetic mutations DF508 and 621+1G->T. It's easy to join the group, simply add yourself to the group at https://www.facebook.com/groups/354896417903931/ or leave a comment with your Facebook name and we'll add you.
Bennett's "Scarf" - The other day, Bennett, who is 4, said, "*I don't like my scarf.*" "Scarf" is his word for the scar he was received when he underwent life-saving surgery a...
1 day ago